ABOUT JANAAN HEALTH – The history
Fareeha Janaan (16TH OF APRIL 1999- 18TH NOVEMBER 1999) is our daughter who passed away from an incurable childhood cancer at Great Ormond Street Children Hospital in London. The Janaan health is founded in the fond memory of our beloved daughter. In Fact, the charitable health project begun as “Foteh Yousuf Health Project” after my graduation in 1997. The aims are to create awareness, screening programs, advice and guidance services , where appropriate supports life changing corrective surgeries. The journey started from my root, Foteh Yousuf, Tigers Hill, Kalimabad, Bhatera, Kulaura, Moulvibazar, Bangladesh. This is now a global project with the support of great colleagues and professionals providing services across the globe. Janaan Health advocates affordable healthcare for all and collaborates globally to improve the quality of healthcare and education for the best outcomes in the societies in need.
The Janaan Health Foundation named after our beloved daughter FAREEHA who passed away from an incurable childhood cancer despite all the effort from world’s best specialist care at great Ormond street children hospital, London in November 1999. Saddened physician fathers only consolation was; Fareeha has been treated in the best centre with utmost effort. Nothing else could have been done better for her care in this world. The example of – the care ,the compassion and the empathy Fareeha and we have received have always vivid in my mind. That should be the case in reality for each and every individual in our society. I believe, all the time.
We all hope and dream of helping people who are disadvantaged, deprived due to their demographics. where they live is a coincidence not by choices ,this is not determined by the individuals but by the nature. Baba Hafiz Mohammad Yusuf Ali Ibn Foteh Ali shah always used to say “Baba”! ‘become a best qualified and trained specialist doctor, gain wealth of experience and knowledge to help the needy ,those who are desperate during their time in need’. This suggestions and prayers of my father are the planted seed in my mind from a very young age. He would always say , make things affordable to get the maximum benefit out of it and try your best to make things universal for all.
I moved to the UK after completing my final medical degree and started as a trainee physician in the UK. I was inspired and fascinated by the way the NHS system works and the total support the patients and their families receives in the UK. Patients can and have any treatment anywhere in the country without spending a penny from their pockets, the social welfare systems is in place, is truly amazing and avoids conflicts of interest. I completed my basic general medical training and obtained MRCP UK degree. Being a physician I always wanted to see myself as a physician cum scientist. I have successfully secured my national training number in haematology; the opportunities came to work in a field where science is working always behind the cure.
I had the great opportunities to receive training in the world’s most prestigious hospitals such as The Royal Marsden NHS foundation trust, Addenbrookes, Cambridge university Hospitals and St Bartholomew’s , the Royal London Hospitals and Guys and St Thomas NHS foundation Trusts. The dream of transferring the knowledge to developing countries where the majority of population lives is always working in my mind. To share, to transfer and improve. Those are the dreams I live with all the times.
Almighty has given me the training in a field where the hope of cure is found in many blood and blood related conditions. More curative options are developing faster. Through Janaan Health we are trying to help knowledge sharing and transferring to those communities where there are great need. We all know and have experiences where our loved ones lost their lives due to lack of early detections, facing diagnostic difficulties and timely treatments.
Here I would like to share some personnel experiences where loved ones lost their lives but in a very different ways. This is not due to anybody’s fault but solely due to lack of integrated affordable healthcare systems.
My beloved Fareeha was diagnosed to have primitive neuroectodermal tumour in great Ormond street children hospital, despite the speedy diagnosis, treatment initiation she died at the age of 7 months and 2 days. we were devastated with the sad ending of her life. I, as a physician father accepted the Almighty’s wish and the consolation that she had the best possible treatment one could ever had.
On the other hand in 2004, my 11 years old nephew who presented to the physician with bone pain and lump in the neck, he underwent test and repeated bone marrow test in different hospital in a country where the diagnostic pathway of suspected cancer is not so well established, He was then transferred to Combined Military Hospital , Dhaka. A presumptive diagnosis of T ALL were made. The anxiety and suffering; the child and his family experienced were so painful is still vivid in my memory all the time.
I was fortunate to know Dr Shekhar Krishnan a paediatric haematologist from Malaysian Medical University who was in his further training in St Bartholomew’s hospital, created a modified protocol for my nephew. I myself eventually took the modified protocol and started the induction chemotherapy in a local hospital which gave him 13 months in remission. Unfortunately he relapsed his disease and died of acute leukaemia when he needed bone marrow transplantation. The first hand experiences of diagnostic difficulties, lack of appropriate blood component support and management of neutropenic sepsis made me so helpless. After making contact, I got instant help from Trivandrum Medical College Hospital in India and arranged his transfer. Sadly, my nephew little Uzzal died of bleeding the day of his planned transfer.
There are many more experiences I have as a haematologist where timely diagnosis and intervention clearly could have made the difference. I am sure we all have the same experiences. Blood and blood related disorders are so serious that one needs to act very fast to save life; it requires timely action, clear pathways, trained personnel with right diagnostic tools. This is the case any speciality.
With all these in mind Janaan health is working and advocating towards a unique solution which is modern, life saving and affordable for all.
Janaan Health is a charitable Foundation project run by Dr Amin Islam ,director of Fareeha Janaan Limited Company, England and Wales and fully supported by the directors personal funds